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Mice, giraffes and autism
by Thomas Sowell
ACCORDING TO SOME REPORTS, the incidence of autism
seems to be increasing substantially. A growth in this tragic
affliction would certainly be a cause for alarm. However, the ways in
which autism is diagnosed include some very crude -- and even
disingenuous -- practices, so it may not be easy to tell whether autism
is in fact more prevalent today or whether words are being used more
loosely. Parents whose children are late in developing speech often
report that speech therapists, social workers, or school personnel tell
them that calling their child "autistic" will facilitate getting the
government to finance treatments that the child may need for his real
problem.
Even when honestly applied, the label of autism can often be a result
of incredibly crude checklists, especially when used by people with no
medical training nor doctorates in related fields. School districts,
especially, often have lower-level personnel evaluating children with
the aid of checklists -- and calling these children "autistic" if the
number of items checked exceeds some magic number or percentage.
If we were to make up a checklist of the characteristics of a mouse --
four legs, a tail, fur, two ears, a digestive tract, etc. -- a high
percentage of those characteristics would also apply to a giraffe. Yet
we never mistake a mouse for a giraffe, because we are also aware of
the ways in which they differ. Even if the similarities reach 80 or 90
percent, we still will not say: "There's a giraffe under the kitchen
sink!"
Yet, in the far more momentous decision to label a child and perhaps
change the course of his education and his life, there are seldom
checklists of differences between autism and other things that may
share similar characteristics.
For example, a study titled "Gifted Children" by Professor Ellen Winner
of Boston College found that youngsters with very high IQs "develop
almost obsessive interests," "often play alone and enjoy solitude,"
have "prodigious memories" and "show intense reactions to noise, pain,
and frustration." She adds: "They refuse to submit to any task that
does not engage them and, as a result, often end up labeled as
hyperactive or with an attention deficit disorder."
They can also end up being labeled autistic, because autistic children
also have obsessive and anti-social behavior, as well as extreme
reactions and prodigious memories. This creates a statistical problem
for those trying to determine whether genuine autism is or is not
increasing -- and a devastation for parents being told that their child
is going to be another "Rain Man."
Overlapping characteristics among very different kinds of children make
checklists dangerous in semi-professional hands -- and sometimes even
in the hands of higher-level professionals, who should know better. One
of the leading authorities on autism, Dr. Bernard Rimland of the Autism
Research Institute in San Diego, has said: "In recent years autism has
become fashionable, and the term is vastly overused."
Those who simply count "symptoms" of autism too often discount contrary
evidence. Precociously intelligent preschoolers, labeled autistic
because they talked late, have included little boys who became very
emotionally attached to some little girl at their school, despite the
fact that such emotional attachments violate the self-absorption that
initially defined -- and named -- autism.
Parents report autistic labels being slapped on their kids in less than
ten minutes by some psychologists and neurologists, simply because the
children were uncooperative and refused to respond to even the simplest
questions. In a couple of cases, a neurologist practically ripped a
little toddler out of his parent's arms and proceeded to undress him,
asking him questions all the while. That a distressed child refused to
cooperate under these circumstances hardly seems surprising. But, when
this was brought to one neurologist's attention, he brusquely declared
that he had examined thousands of children. What he omitted was any
evidence on how often he had been proved right and how often wrong.
Maybe there really is an increase in autism. If so, it is a serious
concern that certainly ought to be addressed. But, if not, that is also
a serious concern, not least for the parents needlessly put through
anguish and the children needlessly sidetracked into programs that can
do them more harm than good.
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